Muscular dystrophy

Resources

Family and patient organizations

Muscular Dystrophy Association:

• Muscular Dystrophy Association in Colorado.

720 S. Colorado Blvd., Suite 480-S
Denver, CO 80246

303-691-3331
303-691-3379 fax

• Muscular Dystrophy Family Foundation.
• Parent Project Muscular Dystrophy.
• ClinicalTrials.gov (search for trials related to DBMD).

Kid-friendly websites

• Kids Health.
• Kids' Quest on Disability and Health.

Health care

• Children’s Hospital Colorado Rehabilitation Clinic.

13123 E. 16th Ave.
Aurora, CO 80045

720-777-2806

• The Neuromuscular Clinic for Muscle Disorders at Children's Hospital Colorado.

Insurance coverage

• Patient Advocate Foundation.

Genetics

• DNA From the Beginning.
• Your Genes and Your Health.
• Understanding Gene Testing.

• CDC Care Considerations page:https://www.cdc.gov/ncbddd/musculardystrophy/care-considerations.html
• Care Considerations Feature Story:https://www.cdc.gov/features/muscular-dystrophy-care/index.html