The Children and Youth with Special Health Care Needs Section uses data, evaluation and research to make decisions about what’s working and what’s not, identify process improvements and guide the overarching strategic direction of our work.
View our most recent additions to this page:
A COVID-19 survey specific to CYSHCN was conducted in 2020. If you would like survey results, please send an email to cdphe.psmchreports@state.co.us. Subject line: COVID-19 Infographic.
Issue Briefs, Journal Articles and Publications related to Medical Home and/or Children and Youth with Special Health Care Needs:
The ABCs of Health Equity for Children and Youth with Special Health Care Needs: A Policy Agenda for Colorado and CYSHCN Policy Agenda Companion (2020)
Note: If you’re looking for data or publications earlier than 2017, please contact us.
Statewide and national data related to Children and Youth with Special Health Care Needs:
CYSHCN COVID-Survey Infographic (2020)
CYSHCN COVID-19 Survey Dashboard (2020)
CYSHCN 2017-2018 National Survey of Children’s Health Indicators Related to 2021-2025 MCH Priorities (2020)
Data Summary: 2018 Community Cafes (local conversations about the future of care for our kids with special needs)
State of Colorado Special Education Data (2016-2021) and Colorado Individuals with Disabilities Education Act (IDEA) State Performance Plan/Annual Performance Reports (2015-2020)
Colorado Child Health Survey Data (2017) See “Medical Home” and “Growth and Development”
Community Inclusion in Colorado: Early Child Care and Disability Resources
Children and Youth with Special Health Care Needs
Population Estimates by County 2022 (Ages 0-25)
New in 2024 - Population estimates of Children and Youth with Special Health Care Needs (ages 0-25) data has been integrated into a CYSCHN specific tab on the Community Inclusion in Colorado website. This information is now part of the Early Child Care and Disability Resources database and provides information about CYSHCN work, HCP Care Coordination, and Information and Referral services for the CYSHCN population. This information will benefit both internal and external audiences including staff at the Colorado Department of Public Health and Environment (CDPHE), Local Public Health Agencies (LPHA), community members, families of Children and Youth with Special Health Care Needs, and other representatives because they will now find information about different types of services and resources in one place.
The Community Inclusion in Colorado maps (CICOmaps) were created by the Colorado Department of Public Health and Environment and University of Colorado Assistive Technology Partners to enhance current emergency preparedness and response planning and resources by making location-based community information easy-to-access. The maps include community demographics and functional characteristics at the census-tract (sub-county) level. They include the locations, service areas, and phone numbers of community providers and health care facilities.